We look at the pet scan which shows a shadowy outline of my body containing the darkened shapes of liver, brain, kidneys, bladder (pee pee is funny :).
The results are in! If you’ve been following the chronicles of my life here, you know I recently got concerned about some symptoms (read here). I called my endocrinologist. She ordered blood tests to check levels of catecholamines and metanepherines. These are substances that pheochromocytomas can make. When they do, it results in episodic hypertension, … Continue reading Resilience to Cancer? Finish Your Shower
Right now I have a paraganglioma in my right neck. It’s called a carotid body tumor because it is wrapped around the carotid artery at the point where the artery splits to provide blood supply to my face and my brain. I had tumor removed from the same location on the left side in 2005. … Continue reading Seasonal allergies or cancer?
As I stood in warrior II with my arms resting by my sides, I was overcome with respect and humility toward my body. MY BODY! Which is such an amazing tool for all the things I love.
Why are you strong, brave, resilient or inspiring? Hint: It has nothing to do with what's gone wrong in your life.
A few weeks ago, after I wrote the post How to start feeling, I asked my therapist, “Do we ever stop numbing? I mean, is there some transcendental state that is attainable where we never numb our feelings again? Is that even possible? Is even that the goal?” I’m not going to try to … Continue reading All things are true
I’m just waking up this morning. I heard River get up out of bed and walk through the house. Then he climbed back into bed, ate a little dry cereal from the bowl he requested last night and he’s been quiet for a while now. I have been mulling over this question of how to … Continue reading Waking up
This morning I woke up early. Like 2:30am. I have a cold so this was a mix of sinus congestion, jitteriness from Sudafed (for the sinus congestion) and my freaking unstoppable mind. Whenever this happens I hear the voice of Dr. Fleisher, the last psychiatrist I worked with, in my head, “Early morning awakening should … Continue reading The unsinkable cork
I made it home and I’ve been plunged back into my life of routine. I am caring for my son, working, working out, responding to requests for help related to church, and running my household. It’s been a little overwhelming. The NIH experience, in some ways, felt like a monastic retreat. I was able to … Continue reading I am still here
I got through my last day of tests today! First thing, I had a third IV placed, this time in my right antecubital space (inside of the elbow). This is radiology’s favorite place to put IVs and my least favorite because every time you bend your elbow it hurts, which is really annoying! I had … Continue reading Day 6: Can you tell I feel lighter?